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Over a half of stroke patients require a degree of help with taking medicine and a sizeable minority say they do not receive as much assistance as they need, according a study published today in the journal BMJ Open.

Because of the risk of a second stroke, it鈥檚 important that stroke survivors take their medication, but our study has shown that this can present challenges

Anna De Simoni

According to the Stroke Associations, as many as four in ten people who have had a stroke, go on to have another one within ten years. As a second stroke carries a greater risk of disability and death than first time strokes, it is important that survivors take medicine daily to lower their risk. There are around 1.2 million stroke survivors in the UK, and at least a third suffer from severe impairments, potentially making adherence to their medicine difficult.

Half of survivors of stroke are dependent on others for everyday activities, though the proportion dependent on others for medicine taking or needing more practical help with tablets is not known.

To examine the practical support stroke survivors living in the community need and receive with taking their medicines, researchers at the 探花直播 of Cambridge and Queen Mary 探花直播 of London carried out a postal questionnaire study. 探花直播researchers developed the questionnaire together with stroke survivors and caregivers. 探花直播questionnaire was completed by 600 participants across 18 GP practices in the UK.

More than half (56%) of respondents needed help with taking medication. This included help with prescriptions and collection of medicines (50%), getting medicines out of the packaging (28%), being reminded to take medicines (36%), swallowing medicines (20%) and checking that medicines have been taken (34%). Being dependent on others was linked to experiencing more unmet needs with daily medicine taking.

Around one in ten (11%) of respondents answered yes to the question 鈥淒o you feel you need more help?鈥 探花直播most commonly reported areas where respondents said they needed more assistance were being reminded to take medicines, dealing with prescriptions and collection of medicines, and getting medicines out the packaging. As a result, around one in three (35%) of respondents said they had missed taking medicine in the previous 30 days.

Stroke survivors taking a higher number of daily medicines and experiencing a greater number unmet needs with practical aspects of medicine-taking were more likely to miss medications.

Interestingly, the researchers found that younger stroke survivors were more likely to miss their medicines, possibly because they are less likely to receive help from a caregiver.

鈥淏ecause of the risk of a second stroke, it鈥檚 important that stroke survivors take their medication, but our study has shown that this can present challenges,鈥 says Dr Anna De Simoni from the 探花直播 of Cambridge and Queen Mary 探花直播 of London. 鈥淚n the majority of cases, they receive the help they need, but there is still a sizeable minority who don鈥檛 receive all the assistance they need.鈥

James Jamison at the Department of Public Health and Primary Care, 探花直播 of Cambridge, who led the study as part of his PhD, adds: 鈥淥ur study has shown us some of the barriers that people face to taking their medication regularly. We also learned that stroke survivors who are dependent on others are most likely to need more assistance than they currently receive.

鈥淥ur response rate was relatively low 鈥 just over one in three 鈥 so we need more research to find out if what we鈥檝e heard from our respondents is widespread among stroke survivors. If so, this will have implications for the care provided.鈥

探花直播team point to the need to develop new interventions focused on the practicalities of taking medicines and aimed at improving stroke survivors鈥 adherence to treatment. 鈥淎dvances in technology have the potential to help improve adherence, such as electronic devices prompting medication taking times,鈥 says Jamison. 鈥淓fforts to improve medication taking among survivors of stroke using technology are already underway and have shown promise.鈥

探花直播research was supported by the Royal College of General Practitioners, National Institute for Health Research (NIHR), the Stroke Association and the British Heart Foundation.

Reference
Jamison J, Ayerbe L, Di Tanna GL, Sutton S, Mant J, De Simoni A. 2018 BMJ Open. DOI: 10.1136/bmjopen-2017-019874


Researcher profile: James Jamison

James鈥 research seeks to understand why people sometimes do not take the medications prescribed by their GP 鈥 and then to use this to inform interventions aimed at improving their medication taking practices.

His day-to-day activities are very varied, he says. 鈥淭hey can involve anything from听the development of research proposals, liaising with GP practices and pharmacies in the East of England to set up research studies, training health care professionals in research procedures,听conducting interviews with patients,听collecting questionnaire听data or writing up research for publications in health care journals.鈥

However, the most rewarding and interesting part is coming face-to-face with stroke survivors and their caregivers to talk about their condition and the听daily challenges they face, he adds.

鈥淲orking at Cambridge provides the听opportunity to be part of a leading department conducting research in primary care and offers the potential to work with esteemed colleagues in the field,鈥 he says. 鈥 探花直播opportunity to deliver听high quality research outputs and undertake collaborations will hopefully help further my career as a successful health care researcher.鈥



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